Sweet's Syndrome Support Site
LAST LIVE UPDATE
Your tax deductible donations keep our site going.
Oct 2014

We have all heard that STRESS kills. Do you know that STRESS exacerbates and kicks in your SS making you sicker. STOP. BREATHE. RELAX. DO SOMETHING CALM FOR YOU. Stress should be kept to a minimum. Remember YOU ARE NOT ALONE. Trust in God.

You are not alone!
   

HOW TO JOIN THE FORUM

STEPS: 1. Go to the FORUM page
2. Click on the REGISTER link. Fill out the information
3.THEN E-MAIL ME WITH THE E-MAIL ADDRESS YOU USED TO JOIN so I can approve it. (to avoid spammers joining our FORUM, I have chosen to approve FORUM MEMBERS manually) I check my e-mail several time a day & I will approve your membership as soon as I see your e-mail.

Additional Support Site Links coming soon!

OUR SITE IS CURRENTLY BEING UPDGRADED AS OF OCT 2014. THANK YOU FOR YOUR PATIENCE AS I WORK TO UPDATE.

NORD

At the National Organization for Rare Disorders; more than 20 organizations, agencies, and companies signed on as Rare Disease Day Partners to promote awareness of rare diseases as a public health issue for World Rare Disease Day on Feb 28, 2009. Through their efforts, awareness was raised across the nation via special events, letters to the editor, videos, news stories and state proclamations.

Click Here for a List of Medical Sites with information on Sweets Syndrome

WARNING: CONTENT BELOW THIS TEXT CONTAIN PICTURES THAT ARE GRAPHIC IN NATURE. THE PHOTOS ARE OF REAL PEOPLE THAT HAVE REAL SWEET SYNDROME LESIONS.
 
Here are some Medical Site links that have come out of the dark finally! CLICK HERE
Do these lesions look like yours? Sweet Syndrome Pictures range ages 16 - 60+ are located on this page and in the FORUM Gallery.
 
 

Sweet's Syndrome is NOT Contagious

I created this support site when I read the few medical websites available with information pertaining to Sweets Syndrome. The information confused me, contained antiquated information and gave me no answers.

In 2009 they said women between ages 50 - 65 were the main affected, it was not recurrent, did not leave scars, called it a rash that usually happened on the upper extremities. WRONG...so wrong! 90% of my lesions were on my legs. Mayo and a few of these sites have now corrected some of their information but they have a long way to go and I am here to help them, help me, help you!

So much has changed since I created this site in early 2008. I will do my best to add information to this homepage as I learn and PLEASE be sure to read/join the FORUM area as so many of us have written our experiences, treatments and questions there.

No one knows as much about this illness as we do

I have had dozens of Physicians locally that tried to help, denied me treatment, treated me like I was crazy and even after years of photo and hospital documentation insisted that SS only occurs once! When my 1st Bone Marrow biopsy came back negative for leukemia and colonoscopy with no Chron's; it was like..oh well, we don't know and we can't help you! Finally after a stay in ICU June 2010 (lungs problems "WHITE LUNG" that none of the Drs. here could treat) my local Pulmonologist got me into Mayo Clinic in Jacksonville, FL. I have been through so many tests and treatments over the past 6 years and I am still here ~ with Sweets taking Prednisone & Antibiotics when absolutely necessary and trying like you are to find answers. Even Shands Teaching Hospital gave up on me after only a few visits! I will update my personal battle and any new information I find in the forum and some on this page. Don't give up YOU REALLY ARE NOT ALONE!

My Sweet Syndrome Symptoms

Multiple recurrent Lesions (most on my legs, arms and hands) , Extreme high white blood cell counts - Leukocytosis (my normal WBC is around 15 - 20,000 and has been as high as 65,000 - normal should be no higher than 10,000), Upper Respiratory Infections, Recurrent Pneumonia, BONE PAIN, Deteriorating Vision , extreme Fatigue, feeling like I have the flu symptoms all the time, high fevers (104-f prior to lesions) , profuse Night Sweats, Pitting Edema, Pain radiating from base of neck - down spine, Diarrhea, Vomiting, Loss of Appetite, Migraine Headaches, Memory problems, hand eye coordination issues, Neuropathy, Fibromyalgia and now interior enlarged Lymph Nodes (one in between my lungs known as the precarinal region has grown from 1" in two months to over 4" and several new ones have developed.) I am heading to Mayo early Oct 2010 for the 4th attempt to biopsy the largest one I am hoping this will give us some answers because most of us DO NOT have Cancer, Chron's, RA or other "usual causes" and there are a multitude of other symptoms as you will read in others posts on the forum.

What is Sweets Syndrome?

CLINICAL DEFINITION: Sweet's Syndrome, or acute febrile neutrophilic dermatosis is a condition characterized by the sudden onset of fever, leukocytosis, and tender, erythematous, well-demarcated papules and plaques which show dense neutrophilic infiltrates on histologic examination. Named for Robert Douglas Sweet in 1964. Although it may occur in the absence of other known disease, Sweet's syndrome is often associated with hematology disease (including leukemia), and immunology disease (rheumatoid arthritis, inflammatory bowel disease). A genetic association has been suggested, but no specific genetic link has been identified. You will read these types of definitions on medical websites.

How is Sweets Syndrome Diagnosed?

Your dermatologist can usually diagnose Sweet syndrome simply by looking at the lesions. But you're likely to have certain tests to rule out conditions that have similar symptoms and to search for the underlying cause. These tests include:

  • Blood tests. A small sample of your blood may be sent to a laboratory where it's checked for an unusually large number of white blood cells and certain blood disorders, both of which are common in Sweet syndrome.

For the test, a small amount of blood is removed from a vein in your arm. Risks of the procedure are almost nonexistent, and you can return to your ordinary activities right away.

  • Tissue sample. Your doctor may remove a small piece of affected tissue (biopsy) for examination under a microscope. The tissue is analyzed to determine whether it has the characteristic abnormalities of Sweet syndrome.
The area where the sample is taken is numbed, and a small piece of skin is removed with an instrument that looks like a small cookie cutter — a procedure called a punch biopsy. You're not likely to need stitches, and the incision should heal with little scarring.

My View on Sweets Syndrome


MY DEFINITION:
I believe Sweets Syndrome - also known as Gomm-Button Disease (site link courtesy of Terrie A.) and Acute Febrile Neutrophilic Dermatosis presents itself different to varying degrees for everyone. Even the lesions look different, take a look at the pictures in the Gallery. For me this is what Sweets Syndrome is…A LIFE CHANGER! YOUR LIFE IS NOT OVER, I just have to modify how I live my life and care for my mind, body and soul. If you read some of the posts on the Forum you will see there are SS Survivors that have been able to manage their lesion breakouts..DO NOT GIVE UP HOPE!

MY LESIONS: It causes very painful lesions on your skin (lesions are NOT contagious!) for me the lesions start out like little white heads, within a couple of days they become quarter sized and very very painful. A few more days they grow as fast and furious as they want to, I have had them the size of an orange and eat 1" into the skin. My best analogy is "it feels like someone has a lit cigar pressed on your skin for days or weeks or months. I usually get pitting edema around the lesion(s) body part..leg, arm, back. It does leave scars and it does come back, and you do not have to be "older" to get it (just look at the list to the right.) It is not contagious. It is not controllable. It is not curable.

Living with Sweets Syndrome

Sweet's Syndrome, also know as acute febrile neutrophilic dermatosis, is such a confusing disease for both the patient and physician. Sweets-Syndrome.com goal is to provide Sweet's Syndrome Survivors and the people in our lives an opportunity to connect with other persons affected by this rare illness. To share our stories, gain information and be supportive to each other in understanding what is happening to our bodies, our lives. I am not a Dr. or Nurse, I am a Sweets Syndrome patient just like you, hoping for answers and connecting with others that understand what it is like to live with this painful and confusing illness, people that can share how they manage their breakouts and pain and keep on keeping on!

Be an Active Participant in your Treatment! Many people are taught as "patients" to be passive recipients of the care provided by medical experts. But don't forget-this is your body, your life. Don't fail to ask questions that are important to your emotional and physical well-being out of fear that you will be "taking up someone's time." As many of you know Sweets Syndrome is so rare that many HealthCare providers have never heard of it. This is where you can really help yourself and others... Teach them what Sweet's Syndrome is to you.

Keep a log of your symptoms, medications, tests and results, your outbreaks of lesions and if possible take photographs. I carry a three ring binder with me to all health related visits and I take the opportunity to "show and tell" Healthcare workers what Sweets Syndrome is. I am continually surprised by the acceptance of my knowledge from HealthCare providers. Sweets Syndrome may be new to them and you may be one person that can educate them and cause the intrigue to look further.

Request information from educational associations, such as NORD (National Organization for Rare Disorders.) Ask your doctor, nurses and other caregivers whenever you have a question, if they do not know the answer ask them if they will look into it for you before your next visit. HealthCare providers have access to information that we do not. Educate yourself with what is currently known about the illness, the possible under- lying causes, tests and treatments. This can help you better understand what is or isn't happening to you & you will be better equipped to advocate for personalized, compassionate care. You may not be in control of your illness, but you can and should be in control of your care.

Be Tolerant of Your Physical and Emotional Limits
Sweet's Syndrome and its treatments most likely leave you feeling fatigued. Your ability to think clearly and make decisions may be impaired. Your low energy level may naturally slow you down. Respect what your body and mind are telling you. Nurture yourself. Get enough rest. Eat balanced meals. Lighten your schedule as much as possible. Above all, try to keep a positive attitude!

When people are seriously ill, we tend to get caught up in statistics and averages about physical deterioration, treatments and survival. These can be helpful to know, but they don't always provide spiritual and emotional comfort. You can find hope in your next treatment, your next visit from someone loved, your spirituality. Hope is "the feeling that what is wanted can be had or that events will turn out for the best"... Keep Hope!

Embrace Your Spirituality
If faith is part of your life, express it in ways that seem appropriate to you. You may find comfort and hope in reading spiritual texts, attending religious services or praying. Allow yourself to be around people who understand and support your religious beliefs. If you are angry because of your illness, realize that this is a normal and natural response. Find someone to talk to who won't be critical of whatever thoughts and feelings you need to explore. Remember that God does not want you to suffer.

Reach Out for Support
Many of us grew up believing, "Do it on your own so you don't have to depend on anyone else." But confronting a life-changing illness cannot and should not be done alone. As difficult as it may be for you, you must reach out to your fellow human beings. Most of us know who we feel comfortable turning to when we are under stress. Who do you turn to? Give yourself permission to reach out for prayers, support and practical assistance.

If you do not have a large circle of family and friends, find out about local support groups for people with life-changing illness. You might also consider seeing a counselor one-on-one. Whatever you do, don't isolate yourself or withdraw from people who love you. That is why I created this site...so you are not alone, you have others to reach out to that understand and will provide an understanding ear and words of encouragement and hope.

Please be sure to join the forum and share your information about this rare disease. Knowledge is power and having Sweets Syndrome can leave you feeling powerless. We owe it to ourselves and each other to share what Sweets Syndrome is so that more understanding can be gained and hopefully soon a control can be found for your particular problem with SS. Reach out and make a connection with other people that have Sweet's Syndrome.

The FORUM area of the website includes pages that contain other SS Survivor stories, how to apply for disability and a place for you to SHARE YOUR experience. Others have posted their experiences in the guest book area, which is being moved to the Forum. Your input is crucial to helping, uplifting, empathizing and spreading hope to others that are feeling your pain.

Hopefully this information can be helpful to provide your physicians that are interested in helping you find the "connector" and hopefully a cure or at least a control. Perhaps it will help you to avoid or find a medication that will help you. A way to survive the breakouts and keep going. Hopefully, we can all pull our information together and we can actually help other victims of this rare disease manage all the pain and frustration we are going through!

Please do not get discouraged if no-one replies to your posts quickly as we are all fighting illness and are not always up to par. If you find you need to have a more one-on-one discussion please feel free to e-mail me at kim@sweets-syndrome.com and I will do my best to reply quickly, but remember I too am ill and sometimes am slow but I will respond.

I will also do my best to update medical information and progress being made in reference to Sweet's Syndrome research as I find it.

Together we can make a difference!

 

One of My Sweet's Syndrome Lesion Progression
 
 
See Photo Gallery for other types of lesion presentations
Scroll down page for other examples & visit the Forum Gallery to view other variations of Lesions
 

You are not alone! update coming soon

Who

Amy
Angeline
Anne
Barbara
Barbara
Becky
Brenda
Brooke
Charlotte
Cherie
Cheryl
Chris
Christine
Cindy
Conrad
Darlene
David's Wife
Deanna
Donene
Donna L
Elize
Ella
Faye
Fiona
Garys Daughter
Helena
Jenette
Jeni
Jennie
Jennifer
Joyce
Karla
Kelly
Kendahl
Kim
Laurie
Leann
Leha
Leona
Lisa E
Lisa K
Maggy
Marla
Maryanne
Maryrose
Melanie
Mireille
Mr. Jayasundara
Natalia mom
Peter
Robert
Roberta
Sal
Sharryn
Sheila
Shelley
Shirley Ng
Stacey
Susan Susie
Tamara
Terri
Terri
Terri
Terrie
Vanessa
Wandy


Average Age

Age in 2010

34
27
53
60
41
57
27
29
37
36
46
53
44
40
63
43
40
49
56
52
52
45
55
16
?
?
24
57
23
35
45
53
48
15
46
?
46
50
57
44
29
25
51
52
?
22
20
60
16
?
?
58
65
42
55
56
30
37
45
50
46
44
34
45
39
40



33.9

Onset/Diagnosed

2009
2008
2006
2001
2001
1993
2009
2004
2008
2008
2003/2004
1998/2002
2010
2007/2010
2010
2009
2000
1980/1990
1992
2004/2009
2003
2001/2006
2003
2007
2009
2010
2006
2007
2009
2008/2009
2009
2008
2009/2010
?
2007
?
2009
2007
1999
2007
1992/2003
2007
2008/2010
2006
2006
2005/2009
2007
2010
2010
2005
?
2005
2007/2009
2005/2009
2007
1989/1990
?
1999/2009
2000/2005
1994
1994
2005
2008
1963
2009
2004

 

Lives in

Florida
New York
England
New Hampshire
Oklahoma
Texas
Australia
Georgia
England
?
Ohio
Ohio
Alabama
Tennessee
South Carolina
Conne River NL CANADA
Qnslnd Australia
Brisbane Australia
New York
Oregon
Australia
Florida
Tennessee
Alberta CANADA
?
Melbourne, Australia
Florida
Georgia
North Carolina
West Virginia
Maryland
Indiana
California
?
Florida
Michigan
Wyoming
California
Texas
Alabama
Maryland
Oregon
Connecticut
Malta
Brisbane Australia
Florida
QUEBEC CANADA
Kadawatha Sri Lanka
California
Solihull UK
Florida
Scotland
OHIO
Australia
CANADA
Florida
Malaysia
Arizona
Michigan
Texas
QUEBEC CANADA
Indiana
Missouri
IN/MO
Florida
Puerto Rico

 

I will be updating our list of Sweet Syndrome Survivors in the near future. So if you do not see yourself listed here, please know I am working on it as my health permits. God Bless You All.
  affiliate_link
 
 
About the Author

My name Is Kim Townsend- Jones, I was diagnosed with Sweet's Syndrome in 2007 after several misdiagnosis since Aug 2006. If your story is anything like mine, you were probably misdiagnosed or not diagnosed at all; at the onset of your first breakout and it's been an uphill struggle from there on out. I have been treated with a myriad of medications; from Steroids to Antibiotics and a liquid Saturated Solution of Potassium Iodide (SSKI) to Dapsone, Remicade, INH, IVIG. These medications made the lesions worse, however I still take Prednisone when the lung & lesions start to get bad. There are so many medications and physicians that do not agree and/or do just do not know anything about our illness. I have found no concrete answers, control or cure as of this date. VERY FRUSTRATING and sometimes overwhelmingly discouraging ... HOPE ~ KEEP THE HOPE!

You can view other information I have posted, most of it is years old, but it is out there on the web Squeaking! Please be patient with me as I work to get our site updated and contact members. The SS, stress, multiple pneumonia's and treatment for Latent Tuberculosis took a lot out of me as I cared for myself and my very sick mother. My mother Norma provided a large portion of the funding to keep our site up & going, Mom passed away June 28, 2012 and I sincerely need your help to keep this site alive. I will do my best to be here for you all and I ask that you do the same for each other on the FORUM. I would like to thank Leha, Lisa, Jenny, Shiela and the rest of you that have kept the forum going. God Bless You & please don't give up. There a new people everyday and we all really need each other.

The Drs TV Show
I started writing this program early 2009 and have still had no response ( write biweekly. Perhaps you could write them also. There is power in numbers maybe the more of us that write the producers will take notice.

YouTube
Michael Moore was looking for HealthCare Horror Stories. The pictures of my lesions are not very good, but I bet you will see yourself in some of the middle of the night crying, begging, confused banter. But this is what I lived like for 2-1/2 years! No Insurance - NO answers! I am now on disability for the Sweet's Syndrome so I am finally getting in to see the right doctors.

Hugs ~ Kim

Contact Information: admin@sweets-syndrome.com

When I asked one of my Physicians why more research wasn't being done he said "The squeaky wheel gets the oil Kim!" Well guess who started SQUEAKING!?! And I will not quit until I can find some answers for us.

Won't you please squeak with me?

"What you thought before has led to every choice you have made, and this adds up to you at this moment. If you want to change who you are physically, mentally, and spiritually, you will have to change what you think."
Dr. Patrick Gentempo

May 6, 2012

In the process of renovating our site. Please keep me in your prayers.

 

LAUGHTER IS THE BEST MEDICINE!

While the verdict is out on whether laughter plays a role in healing, the American Cancer Society and other medical experts say it reduces stress and promotes relaxation by lowering blood pressure, improves breathing and increases muscle function.

What Causes Sweet's Syndrome?

NOTE: I have been told by 2 different doctors; one at Shands and one at Mayo; that Sweets Syndrome may actually BE the underlying illness! The information below is taken from Mayo Clinic's website. If you look at the ages on our website, you will see they still don't have it right.


Although Sweet's syndrome may be associated with infections, the condition itself isn't infectious. Sweet's syndrome is typically divided into three categories, depending on its associations:


Idiopathic (classical). What Mayo Clinic Says: In most cases, the cause of Sweet's syndrome isn't known (idiopathic). Idiopathic Sweet's syndrome predominantly affects women between the ages of 30 and 50, and is often preceded by an upper respiratory or gastrointestinal infection. It's also been associated with pregnancy and inflammatory bowel disease. I think this says what I stated above.


Malignancy-associated.

In about 20 percent of cases, Sweet's syndrome is associated with cancer (malignancy), most often acute leukemia. A few cases may be associated with a solid tumor, such as breast or colon cancer. Sweet's syndrome can occur as an early sign of a cancer, after diagnosis or as a sign of a recurrence. Fever is often present but skin lesions typically aren't preceded by an upper respiratory infection, as is the case with idiopathic Sweet's syndrome. Malignancy-associated Sweet's syndrome appears to affect men and women equally but among older adults, it's more likely to occur in women.


Drug-induced. Although uncommon, Sweet's syndrome may occur as a reaction to a medication, most commonly to granulocyte colony-stimulating factor, a hormone preparation designed to increase your white blood cell count. Other medications associated with Sweet's syndrome include certain antibiotics, oral contraceptives, diuretics and anti-epileptic drugs, among others. Once the offending drug is discontinued, Sweet's syndrome usually goes away. from Mayo Clinic Website Nov. 2010

NOT ALL LESIONS LOOK ALIKE. MAKE SURE YOU CHECK THE MAIN GALLERY IN THE FORUM TO SEE DIFFERENT TYPES OF LESIONS PRESENTATIONS. YOU CAN ALSO CLICK ON "USER ALBUMS" FOR MORE PICTURES AND TO ADD YOUR OWN.

YOU ARE NOT ALONE !!!

Other Site Member Lesion Presentations

 
63 yr. old male BACK
52 yr. old female BACK
 

If you look through the Forum Gallery you will see even more presentations/what Sweet's Syndrome Lesions may look like.

Sweet's Syndrome is not pretty, if this is what our bodies look like on the outside...what is happening on the inside?

You must be an active participant in your treatment! Ask your Doctor what the determining factor is for your diagnosis of Sweet's Syndrome.

Dr. Robert Douglas Sweet

Sweet's Syndrome was named after:

Dr. Robert Douglas Sweet
English dermatologist, born December 26, 1917, Weybridge, Surrey; died September 28, 2001.

Full Articles on Dr. Sweet & Sweet's Syndrome

Biography

SS A Comprehensive Review

Did you know Sweets Syndrome is also referred to as
Gomm-Button Disease?

 
 

Health News Feed

Respiratory / Asthma news headlines provided courtesy of Medical News Today.
 
 
Other Site Member Lesion Presentations
29 yr. old female SS in EYE
45 yr. old female HAND
16 yr. old female LEGS & FEET

Skintegrity - I do not make money for this product, IT JUST WORKS, for me.

Skintegrity Wound Cleanser

Manufactured by: MEDLINE 1-800-950-8585

 

WHY I WANT YOU TO KNOW ABOUT THIS PRODUCT

While I cared for my diabetic mother, she is prone to falls has Parkinson's and is on blood thinners. Mom fell 2 months ago and has a terrible skin tear. The Home Healthcare Company brought out a product called SKINTEGRITY for me to clean her wound. I happened to be in the midst of cleaning my lesions with Peroxide when the Nurse was visiting and she yelled.... STOP KIM! Peroxide eats away the skin, you should never use that on your lesions! Try this SKINTEGRITY and see if it helps.

So I proceeded to cleanse my lesions with the SKINTEGRITY and OMG it really stung/burned! But I continued to use it and TWO…yes I said 2 - Days later my lesions were healing fast! (SKINTEGRITY WORKED, IT STOPPED THE LESION GROWTH AND SPREADING AND HEALED THEM FAST!) Not raw anymore and had stopped spreading around my leg. I have used several topical meds that my dermatologist and other specialists gave me, like Clobex and many others that I don't remember off hand; all of which made the lesions worse. This product is AMAZING for me. If not for this I would have had an Ankle bracelet of lesions! THIS IS THE FIRST PRODUCT or HOME REMEDY THAT HAS HELPED MY LESIONS HEAL QUICKER SINCE THE ONSET OF MY SS I TRULY HOPE THAT IT CAN HELP YOU TOO !!!

 

The picture to the LEFT was taken on December 03, 2009. You can see the lesion toward the bottom of my leg (the bigger one) was blistering to start popping even more lesions around it. It normally would have grown and connected with the small lesion coming up that you can see in the right picture (little red bump) there were also lesions coming up all the way around the leg. It did not stop the edema but it stopped and started healing the lesions! This is the most AMAZING product I have Found

I hope you try it!

 

The picture to to RIGHT was taken on December 05, 2009 after cleansing the lesion 3 times a day with Skintegrity. Same lesion shown on the right at the bottom of my leg. ALL the blistering of new lesions ARE GONE! The upper lesion (not shown here was completely smooth and that little red bump was the size of a nickel before the Skintegrity.

I SWEAR this is TRUE TRUE TRUE! If not for the Skintegrity I would have had lesions all the way around my leg and up! ONLY TWO DAYS!

UNITED STATES PURCHASING

SKINTEGRITY is an over the counter product so you DO NOT have to order from Medline and pay the shipping cost!

SKINTEGRITY is typically ordered by Healthcare professionals by the case from the Manufacturer; Medline. I contacted the company and in the USA we can purchase ONE Bottle at a time so you can try it and see if it helps your lesions like it did mine. Medline could only give me an approximate price which is listed below. You can order from them and pay shipping or purchase it from one of the listed retailers.

USA MEDLINE ORDER LINE: 1-800-950-8585

HOW TO GET IT!

SKINTEGRITY CAN BE PURCHASED OVER THE COUNTER AT THE FOLLOWING STORES:

Cosco
CVS
K-Mart
Target
Walgreens
Walmart

If your local store does not stock it, my local store does not, do what I did and ask them to order it in for you.

Please feel free to let us all know if you try it and how it works for you!!

Or visit the MEDLINE website

INTERNATIONAL PURCHASING:

SKINTEGRITY is an over the counter product so you DO NOT have to order from Medline and pay the shipping cost!

SKINTEGRITY is typically ordered by Healthcare professionals by the case from the Manufacturer; Medline. Unfortunately the company says they do not sell this product to individuals Internationally. Hopefully you can locate one of the stores listed in your area or find a Pharmacy or Store that carries it. Just like in the USA if they do not stock it in your area, ask them to order it in for you.

8 ounce SPRAY BOTTLE
Product No.: MSC6008H
Pricing IS SUBJECT TO CHANGE
Approximately $11.08 per bottle, plus shipping
Approximately $54.33 for a case of 6 bottles, plus shipping

16 ounce SPRAY BOTTLE
Product No.: MSC6016H
Pricing IS SUBJECT TO CHANGE
Approximately $12.22 per bottle, plus shipping
Approximately $59.80 a case of 6 bottles, plus shipping

PRODUCT DETAILS

Description: Skintegrity Wound Cleanser: Specially formulated to allow fast, thorough and gentle cleansing of wounds in all stages. Choose mist or stream delivery to loosen and remove protein and wound debris with a non-ionic surfactant. Non-cytotoxic. Trigger sprayer delivers a PSI of 8.6 at 3" spraying distance which falls within AHCPR guidelines of 4 to 15 PSI. 8 oz.
Easy cleansing: Nonionic surfactant facilitates removal of debris and proteinaceous material from wound.
Non-cytotoxic: Nothing in Skintegrity Wound Cleanser will harm the wound bed.
Within AHCPR (Agency for Healthcare Research and Quality) Guidelines: Sprayer delivers a PSI level of 8.6 at a 3" spraying distance which falls within AHCPR guidelines of 4 to 15 PSI.
Adjustable trigger: Trigger sprayer permits either spray or stream delivery.
Latex Free

INGREDIENTS: Purified Water, Sorbittol, Cocoaamphodiacetate, Lactic Acid, Polysorbate 80, Triethanolamine, Dissodium EDTA,, Methlparaben, Lauryl Polyglucose, Imidazolidinyl Urea.

INGREDIENTS DESCRIPTION: (definitions contributed by leha:)

" Sorbitol is a sugar substitute and laxative, probably added to preserve moisture in the wound.
" Cocoaamphodiacetate is a mystery--maybe some kind of enzymatic catalyst? Or a cocoa shell derivative?
" Lactic acid is a bacteriacide, and removes soap scum.
" Polysorbate 80 is used as an emulsifier.
" Triethanolamine is another emulsifier.
" Disodium EDTA binds metal ions (detoxification) and acts as an antioxidant, a preservative, and an anticoagulant.
" Methylparaben is a bacteriostatic and preservative.
" Lauryl Polyglucose is another mystery--maybe a mild detergent.
" Imidazolidinyl urea is an antimicrobial preservative used in cosmetics.
" Lactic acid is a bacteriacide, and removes soap scum.
" Polysorbate 80 is used as an emulsifier.
" Triethanolamine is another emulsifier.
" Disodium EDTA binds metal ions (detoxification) and acts as an antioxidant, a preservative, and an anticoagulant.
" Methylparaben is a bacteriostatic and preservative.
" Lauryl Polyglucose is another mystery--maybe a mild detergent?
" Imidazolidinyl urea is an antimicrobial preservative used in cosmetics.

 

MEDICAL SITES THAT HAVE INFORMATION ON SWEET SYNDROME OR ACUTE FEBRILE NEUTROPHILIC DERMATOSIS

 

Genetic and Rare Diseases Information Center or GARD is a collaborative effort of two agencies of the National Institutes of Health:

The Office of Rare Diseases Research (ORDR) and the National Human Genome Research Institute (NHGRI) to help people find useful information about genetic conditions and rare diseases.

 

The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) offers printed materials on Sweet Syndrome. You can call toll-free at 877-226-4267 to request a copy of this information.

 

The Merck Manuals Online Medical Library provides information on Sweet Syndrome.

 

The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Acute febrile neutrophilic dermatosis.

 

DermNet NZ is an online resource about skin diseases developed by the New Zealand Dermatological Society Incorporated. DermNet NZ provides information about Sweet Syndrome.

 


The Doctor's Doctor web site provides information about acute febrile neutrophilic dermatosis.

 


The MayoClinic provides information about Sweet Syndrome & acute febrile neutrophilic dermatosis.

 


Medscape Reference provides information on this topic. Click on the link to view this information. You may need to register to view the medical textbook, but registration is free.

 


The National Organization for Rare Disorders (NORD) is a federation of more than 130 nonprofit voluntary health organizations serving people with rare disorders.



Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge.

 


PubMed is a searchable database of medical literature and lists journal articles that discuss Acute febrile neutrophilic dermatosis.

 

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-519-3194
800 #: 888-205-2311
e-mail: gardinfo@nih.gov
Home page: http://www.genome.gov/10000409

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info

NORD - National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone Number:
(203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Home page: http://www.rarediseases.org

 
BLACK MOLD CAUSE OF BREAKOUT ~ SLPEEN FULL OF SWEET SYNDROME

 

Two different scenerios that I wanted to share with you from Sweet Syndrome Survivors that e-mailed me.

SWEETS SYNDROME BREAKOUT CAUSED BY BLACK MOLD?
I received an e-mail the day I was in Surgery Oct 20 from Robert and Cheryl F. Robert has SS. Cheryl wrote:
My husband Robert just got over another bout with Sweets--Black mold is what triggers his breakouts. Dr. Sam Moschelli in Boston, Mass. is a leading dermatologist and very familiar with Sweets Syndrome. We will be in Jax tomorrow, Oct. 21, to see a Dr.


Robert nearly made it through this last outbreak without a lot of medical assistance until it hit his feet. His feet were so swollen that the skin was tearing at the top. I took him to St. Vincent's Hospital in Jax and he was hospitalized 3 days. I know the pain and suffering and rejection my husband went through each time! Your own family doesn't even want to be around you! In the past Robert received Remicade IV's to help with the inflammation that Sweets causes. This helped him tremendously but it can be a dangerous drug long term. Have you ever been in contact with black mold?


SWEETS SYNDROME IN SPLEEN AND ADHERED TO OTHER ORGANS
I had posted on the site that Bill had his spleen removed at Mayo in Rochester Minnesota the sweets was inside his Spleen and it was adhered to his other organs. As I understand it even after they removed his Spleen it was not the cause of the SS. Bills' wife Sherry wrote:


This specialist found a bad m protein, but their local doctors don't agree I guess. His local Drs were ready to do a bone marrow transplant, so now they are just waiting to find an answer before they do anything drastic. Still no answer as to what is causing this, but they are hopeful. Right now Bills' sweets is under control with the chemo drug Hydrea.


Three other members have written to tell me that they also had Sweet's Syndrome in the spleen and/or Liver. Is Sweet's Syndrome actually the underlying illness? Is this what's happened to my lungs?

 

 

THANK YOU DOCTOR

A personal Thank You to my Doctors:

I know you probably want to run when you see me coming, I might too if I were you! Bizarre Rare disease, big blue binder, computer, pictures and test results in hand. Lots of medical opinions and tons of questions and most often dozens of lesions on my skin. I want to say Thank you, for not running or sending me to someone else! Thank You, for taking the time to hear me, for taking the chance to treat me and for standing by me when I am horribly ill and looking like a leper under my clothing and feeling like death warmed over beyond my smile.

Your expert knowledge means the world to me, even when you don't know exactly how to treat my Sweets Syndrome. Your not giving up on me and sending me away gives me hope. Your ability to see beyond the "stereotypical" patient and see the real me touches my soul. Since my illness has progressed with no definitive answers as of today; my memory and ability to understand all the medical terminology has decreased greatly; those of you that have known me for years know this. To my new Physicians, I apologize for asking the same questions repeatedly and thank you for your patience.

I admire the time you dedicate to learning your craft - medicine, the countless hours you put in at the office, the hospital, volunteering and being away from your loved ones. THANK YOU Dear Dr. for being you, for caring, for not giving up on me...... Sincerely, Kim Jones

website security



 
SWEET SYNDROME SUPPORT SITE
~How we came to be~

Sweet Syndrome hit me in 2006. I decided to put my efforts into this website to help ALL of us when the information I could find was not correct and I felt so alone. I do not want you to feel alone! I have talked with hundreds of SS Survivors over the course of 6 years and have tried to give and get honest open answers. My Immune System got so weak in 2011 that I contracted Latent Tuberculosis & had to take INH Therapy, which made the fatigue so overwhelming that I have not been very active on the site. I finished my last dose in May 2012. After loosing my mother & my home in June 2012 I am trying to update our support site when I have Internet.

SWEET SYNDROME MEDICAL SITES

OVERVIEW OF THE LINKS BELOW

GARD

ORDR

NHGRI

NIAMS

The Merck Manuals

OMIM

The Doctor's Doctor

NORD

Mayo Clinic 1

Mayo Clinic 2

WebMD

DermNet

Medscape

Orphanet

PubMed 1

PubMed 2

~ 100 Case Articles ~ ~NEW ARTICLES 2012 ~ You MAY have to search Sweets Syndrome on http://www.searchmedica.com as link acts up but is a must read area!

 

WHAT YOU CAN DO AT HOME


LESION HELP

SKINTEGRITY!!!

HOMEOPATHIC

PREDNISONE

~ ~ PREDNISONE~ ~ A necessary Evil?

The good the bad and the ugly

MORE ABOUT SS

What Causes Sweets

SS Found in Spleen

SS & BLACK MOLD

Neutrophils & More

Experimental Treatment

KIM'S SS DRS.

A Note to my Drs.

List of My SS Drs

 

STATS & ORGS

User Contributed STATISTICS

Organizations to assist you in finding information on Sweet's Syndrome

DONATIONS NEEDED

I created, maintain, pay for the hosting, domain and upgrades needed for this site alone. If you can make a small tax deductible donation to assist in the cost I would be very grateful.

If you prefer to mail a donation please e-mail me for address.

In Loving Memory of my mother Norma Watkins who primarily funded our support site. Mom earned earned her Angel Wings on June 28,2012.

 
 

Current Sweet Syndrome Physicians

If you have visited this part of the site you see the list has shortened a lot! I have a lot of work to do. Many people have written me that are receiving treatment and or observation at Mayo Clinic now; which is where I also receive care along with care from my own local physicians.

If you would send me an e-mail with information where you receive care I will gladly add it to this area. If we can all find the same physicians perhaps someone will make a breakthrough. Information on the internet is so scarce and outdated that if we all squeak together maybe changes will be made.

PHYSICIAN/WEBLINK
SPECIALTY/LOCATION
PHONE #
MY PERSONAL EXPERIENCE with these Drs.

Dr. Charles Kovaleski

 


Dr. William McKenzie

 


Dr. Liaqat Hayat

 


Dr. Mark A. Cappel

 


Dr. Richard Agnew

Dermatologist - Panama City, Florida

 


Pulmonologist - Panama City, Florida

 


Internal Medicine/PCP - Panama City, Florida

 


Derma pathology - Mayo Clinic Jacksonville, FL

 


Cardiothoracic Surgeon - Mayo Clinic Jacksonville, FL

850-769-1668

 


850-785-3212

 


850-522-0182

 


904-953-2000

 


904-953-2000

Dr. Kovaleski diagnosed my SS in 2007 by biopsy and treated me when no other Drs would because of insurance! Dr. K. worked for years to get me into Shands. He has never given up on me.


Dr. McKenzie is a great Pulmonologist and saved my life in June 2010. I will forever be thankful for him. Dr. M got me into MAYO after years of denial. We need more doctors like this!


Most of you know that a dozen PCP's in Panama City refused to take me as a patient due to the complications of SS and my other illness', Dr. Hayat stepped in on my case in ER June 2010 working alongside Dr. McKenzie to save my life in June 2010. We need more doctors like this!

 

Dr. Cappel deals with Sweet's Syndrome & Rare disorders.

 


Dr. Agnew will be performing the upcoming diagnostic surgery in Oct 2010.

 
 
Patient Contribution

SWEETS SYNDROME - NEUTROPHILS AND ASSORTED DRUGS & VITAMINS

FIRST & FOREMOST this IS NOT from a Physician It is a post by another SS Survivor that does her homework. However I wanted to add this content to the main page in case you do not see it in the FORUM. Leha has done a lot of research on this illness and I think this post deserves to be read. It may be a little confusing because of the Medical terminology and correlation's but I think Leha is on to something here. You may want to read her other posts in the FORUM about meat and dairy as she has been able to control her lesion breakouts. Thank you for your contributions Leha!

A SWEETS SYNDROME SURVIVOR'S PERSPECTIVE

I've been doing a lot of reading and research about SS, neutrophils, and assorted drugs and vitamins--just sort of following the leads I get from my own condition and whatever I can find on the Internet, as I'm sure we all are doing. I've found some interesting info I think will help us all. Some of it is general to SS and neutrophilia, and some of it is more specific to my own particular case, but here goes.

First, there is a great article about neutrophils and neutrophilia on emedicine.com. Some of you may have seen this, some not, but it's a much clearer explanation than the one on Wikipedia. Here's the link: http://emedicine.medscape.com/article/208576-overview

From this article and various resources on Wikipedia and elsewhere, I was able to put together some pieces that had previously been missing from my understanding of SS.

To begin with, we all know from the SS articles that SS is a possibly T-cell mediated hypersensitivity process, in which large numbers of mature neutrophils infiltrate our systems, targeting mainly the skin, but sometimes other organs, as well. I had long held that my particular SS was a reaction to the antibiotic, Azithromycin (a macrolide) I was given for pneumonia about 3 years ago. My GP disagreed, though, in part because the reaction should have gone away shortly after I stopped taking the drug, and in part, possibly because the literature about SS states that drug hypersensitivity is an unlikely cause for SS. It turns out that he was probably right on both counts, but that overwhelming evidence in my case suggests I was also right. (I'm sorry if you already read about my saga in another posting, but this particular aspect will turn out to be important later, when I talk about the SS mechanism of action.) To cut to the chase, it turns out I was still consuming very tiny amounts of another macrolide, Tylosin, in meats and dairy products. When I eliminated the Tylosin, my SS went away (after a struggle with Prednisone, which I will also talk about). When I accidentally ate foods containing trace amounts of Tylosin in restaurants, the SS would come back--albeit very mildly. I have finally eliminated all of the offending restaurants and only eat known Tylosin-free foods (typically, any animal product must be organic, or certified free of antibiotics). Okay, we are all up to date on that. Now, the new info.

It turns out that Macrolides (such as Azithromycin, Tylosin, Erythromycin, etc.) have a suppressive action on neutrophils. So does Prednisone. Great. So you would think this meant they would be good choices for SS therapy, and yet, over the long haul, the exact opposite seems to be true. Why? Because of the way in which the body keeps its supply of neutrophils up. What our bodies do is they monitor the balance between free-floating neutrophils in the blood and those that remain in marginal locations. When we get an infection, the first thing that happens is that our free-floating neutrophils decrease in number (they are moving in on the infection). The body detects the imbalance between the free-floating neutrophils and the marginal, and it responds by sending out a new batch of mature neutrophils directly from the bone marrow, where they are produced. The body will do this whenever the neutrophils in the blood supply appear to be out of balance; so, for example, if you get a bad burn or injury, or if you get cancer, same deal. If the infection or other injury is bad enough, the body will even call upon immature neutrophils from the bone marrow if it has to. When whatever injury or infection gets better, all those neutrophils remain in the blood until they are killed off by T-cells whose job it is to do that.

In Sweet's Syndrome, we have seen that in many, many of the cases there turns out to be some kind of underlying condition--usually chronic--that the body is already dealing with when the first eruption happens. Also, in some cases, the SS is a response to Granulocyte colony-stimulating factor, which incites the bone marrow to release, among other things, neutrophils. In so-called "idiopathic" cases of SS, there may still be a history of either chronic infection or (more likely) chronic exposure to sub-therapeutic levels of Macrolides in the food chain. And finally, in my case, there was both a history of an unidentified rash on my shoulders and nausea during a time when I was eating a lot of meat and dairy products (followed by a period of abstinence from dairy products, during which time the rash cleared up), and the more recent use of a big dose of a Macrolide to treat pneumonia. What do all of these histories have in common? Repeated calls to the body to produce and distribute more neutrophils. Infections, injuries, autoimmune diseases, pregnancy, and G-CSF all elicit a direct stimulating effect on the body to produce and release more neutrophils. But so does chronic Prednisone use, and even a very small amount of a Macrolide antibiotic, because when they suppress our neutrophils, they create an imbalance in the free and marginal loads of neutrophils in our blood, so that when we stop taking the drug, whammo--we get hit with a load of neutrophils from the bone marrow to balance out the load. Immediately following that, the previously-suppressed neutrophils are no longer suppressed, and suddenly we have way too many neutrophils in our blood. This is why the longer you take Prednisone, the less effective it seems to be at knocking out your SS. It's a great short-term solution (and truly a wonder drug), but with power comes responsibility, and Prednisone, as we all know, is not without its share of gotchas. Add to the existing list that long-term Prednisone use is a known and documented inciter of neutrophilia.

It may be that our bodies are so highly tuned to meet repeated needs for more neutrophils that they've created a toxic internal feedback loop, in which any call to amass a granulocytic attack will be met with a bombardment of misplaced neutrophils.

Further complicating this, Macrolides, in particular, are not only pervasive in the food chain, but are difficult to eradicate from the body because of their inherent ability to reuse themselves, and because of their ability to suppress the very enzymes in our livers that would neutralize them. Macrolides have further been shown to live on in soil, through all kinds of weather, through periods of over 2 months after having been deposited there (in cow manure). And to make matters worse, the manure containing these antibiotics is very often used to fertilize fields that produce crops we eat. Antibiotics have indeed been found in vegetables fertilized with this manure. (All of these data on Macrolides are available in papers published on the web by scientists).

The upshot of it is that to eradicate SS from our bodies will require a multistep process:

First and foremost, we must address any underlying condition, to the best of our ability.

Second, we must avoid not only neutrophil-stimulating substances and events, but also neutrophil suppressants, because these may lead to a delayed neutrophil-enciting backlash.

Third, we should use caution and discretion in long-term Prednisone therapy, for the same reason that we should avoid long-term subtherapeutic exposure to antibiotics: it can result in a state of neutrophilia within our bodies.

Finally, in their activities, neutrophils employ calcium; and their byproducts bind to both iron and vitamin B-12. For this reason, any of us who have experienced prolonged neutrophilia might do well to ensure that our bodies have an ample supply of these nutrients. (My personal experience confirms that I needed a boost of B-12.)

I believe that what we are dealing with in SS is something like an agitated state, in which our bodies are overproducing (or possibly over-looping) mature neutrophils, by means of infiltrates from our bone marrow to our blood (compensating for a perceived falling out with homeostasis), or by means of nullifying or suppressing the killer T-cells that might normally kill off the existing free-floating neutrophils, or maybe by some other means. Regardless of the means of action, we are on fire with neutrohilic readiness, in a way that others are not. Added to that, we may well be misdirecting those neutrophils as a part of the loop our bodies have created (and I'm pretty sure we must be, since not all people with neutrophilia get SS). If our killer T-cells are also enlisted in keeping the neutrophil levels up (by not killing them when they're supposed to), this alone could be enough to cause the kinds of damage that occur with SS, since neutrophils travel by means of breaking down collagen. Again, whatever the mechanism, the solution has got to be careful calming of this looping process, over possibly a very long period, before we can see real results. My three-step plan should help. Even those with underlying conditions they can do nothing about could still potentially benefit from avoiding all unnecessary exposure to neutrophil stimulators or inhibitors.

Finally, a note about how I got off of Prednisone. Before I tell you, though, I want to add the disclaimer that if you have some unresolved, known underlying condition that is keeping your SS looping, and you are on Prednisone to manage the SS, don't do this; and in any case don't do this without consulting your doctor.

What I had to do, even after removing the offending antibiotics from my body, in order to stop the Prednisone itself from inciting neutrophilia on its removal (that backlash effect), was to taper in a kind of unusual pattern. It worked something like this:

1 day, normal dose (for me, I think this was up around 80 mg)
Next two days: Nothing.
Next day: 3/4 dose.
Next two days: Nothing.
Next day: 1/2 dose.
Etc., until all days were under 1 mg.

My theory about why this worked is that it gave my body a chance to calm down with the neutrophil output a little at a time, while knocking back the SS symptoms reasonably well on the dosage days. I won't say I was totally free of SS while doing this, but it was manageable, and by the time I got done, it was gone.

Again, if you are quite sure you've addressed your underlying condition(s) first, and that you are not exposed to anything else that might be either stimulating or suppressing neutrophils, AND you have gotten the go-ahead from your doctor, this method is worth a try. And it did work for me.

And don't forget your vitamins!

All my best to you brave souls!!

Leha............

Thank you for your research and contribution Leha! Hugs Kim

 
 
Homeopathic Remedies

HONEY & CINNAMON

Can a Homeopathic Remedy work for you?

This information has not been verified within the medical community, it is Homeopathic.

Natural or Homeopathic Remedies have been around for thousands of years and are still used by millions of people around the world today. I suggest you speak with your Physician if you are not sure about anything in this article.

Never boil honey or put it in a microwave. To do so will kill the enzymes in the honey.

Included in some of "what ails you treatments" are Skin Infections, Arthritis, Influenza, Fatigue, Heart Disease and more. This information is also posted on Snopes.com and includes a couple of other uses. Posted on Snopes as unverified. For those of you looking for an answer to what ails you, maybe this can help.

Honey is the only food on the planet that will not spoil or rot. It will do what some call turning to sugar. In reality honey is always honey. However, when left in a cool dark place for a long time it will do what I rather call "crystallizing". When this happens I loosen the lid, boil some water, and sit the honey container in the hot water, off the heat and let it liquefy. It is then as good as it ever was.

It is found that a mixture of honey and Cinnamon cures most diseases. Honey is produced in most of the countries of the world. Scientists of today also accept honey as a 'Ram Ban' (very effective) medicine for all kinds of diseases. Honey can be used without any side effects for any kind of diseases. Today's science says that even though honey is sweet, if taken in the right dosage as a medicine, it does not harm diabetic (please check with your physician first) patients.

Weekly World News, a magazine in Canada, in its issue dated 17 January,1995 has given the following list of diseases that can be cured by honey and cinnamon as researched by western scientists:

HEART DISEASES:
Make a paste of honey and cinnamon powder, apply on bread, instead of jelly and jam, and eat it regularly for
breakfast. It reduces the cholesterol in the arteries
and saves the patient from heart attack.
Also, those who have already had an attack, if they do this
process daily, they are kept miles away from the next
attack. Regular use of the above process relieves loss
of breath and strengthens the heart beat.
In America and Canada, various nursing homes have
treated patients successfully and have found that as you age, the arteries and veins lose their flexibility and get clogged;honey and cinnamon revitalize the arteries and
veins.

ARTHRITIS:
Arthritis patients may take daily, morning and night, one
cup of hot water with two spoons of honey and one small
teaspoon of cinnamon powder. If taken regularly even
chronic arthritis can be cured.

In a recent research conducted at the Copenhagen University, it was found that when the doctors treated their patients with a mixture of one tablespoon Honey and half teaspoon Cinnamon powder before breakfast, they found that within a week, out of the 200 people so treated, practically 73 patients were totally relieved of pain, and within a month, mostly all the patients who could not walk or move around because of arthritis started walking without pain.

BLADDER INFECTIONS:
Take two tablespoons of cinnamon powder and one teaspoon of honey in a glass of lukewarm water and drink it.
It destroys the germs in the bladder.

CHOLESTEROL:
Two tablespoons of honey and three teaspoons of Cinnamon
Powder mixed in 16 ounces of tea water, given to a cholesterol patient, were found to reduce the level of cholesterol in the blood by 10 percent within two hours.
As mentioned for arthritic patients, if taken three times a
day, any chronic cholesterol is cured. According to
information received in the said Journal, pure honey taken
with food daily relieves complaints of
cholesterol.

COLDS:
Those suffering from common or severe colds should take one tablespoon lukewarm honey with 1/4 spoon cinnamon powder daily for three days. This process will cure most
chronic cough, cold, and clear the sinuses.

UPSET STOMACH
:
Honey taken with cinnamon powder cures stomach ache and
also clears stomach ulcers from the root.

GAS:
According to the studies done in India and Japan, it is
revealed that if honey is taken with cinnamon powder the
stomach is relieved of gas.


IMMUNE SYSTEM:
Daily use of honey and cinnamon powder strengthens the
immune system and protects the body from bacterial and viral attacks. Scientists have found that honey has various
vitamins and iron in large amounts. Constant use of
Honey strengthens the white blood corpuscles to fight
bacterial and viral diseases.


INDIGESTION:

Cinnamon powder sprinkled on two tablespoons of honey taken before food relieves acidity and digests the heaviest of meals.

INFLUENZA:
A scientist in Spain has proved that honey contains
a natural ' Ingredient' which kills the influenza
germs and saves the patient from flu.


LONGEVITY:
Tea made with honey and cinnamon powder, when taken
regularly, arrests the ravages of old age. Take four
spoons of honey, one spoon of cinnamon powder, and three
cups of water and boil to make like tea. Drink 1/4
cup, three to four times a day. It keeps the skin
fresh and soft and arrests old age. Life spans also
increase and even a 100 year old, starts performing the
chores of a 20-year-old.

PIMPLES:
Three tablespoons of honey and one teaspoon of cinnamon
powder paste.
Apply this paste on the pimples before sleeping and wash it
next morning with warm water. If done daily for two
weeks, it removes pimples from the root.

SKIN INFECTIONS:
Applying honey and cinnamon powder in equal parts on
the affected parts cures eczema, ringworm and all
types of skin infections


WEIGHT LOSS:
Daily in the morning one half hour before breakfast on an
empty stomach, and at night before sleeping, drink honey and cinnamon powder boiled in one cup of water. If taken
regularly, it reduces the weight of even the most obese
person. Also, drinking this mixture regularly does not
allow the fat to accumulate in the body even though the
person may eat a high calorie diet.

CANCER:
Recent research in Japan and Australia has revealed that advanced cancer of the stomach and bones have been cured
successfully. Patients suffering from these kinds of
cancer should daily take one tablespoon of honey with one
teaspoon of cinnamon powder for one month three times a
day.



FATIGUE:
Recent studies have shown that the sugar content of honey
is more helpful rather than being detrimental to the
strength of the body.
Senior citizens, who take honey and cinnamon powder in
equal parts, are more alert and flexible. Dr.
Milton, who has done research, says that a half tablespoon
of honey taken in a glass of water and sprinkled with
cinnamon powder, taken daily after brushing and in the
afternoon at about 3:00 P.M. When the vitality of the
body starts to decrease, increases the vitality of the body
within a week.



BAD BREATH:

People of South America, first thing in the morning,
gargle with one teaspoon of honey and cinnamon powder mixed in hot water, so their breath stays fresh throughout the day.



HEARING LOSS:
Daily morning and night honey and cinnamon powder, taken in equal parts restores hearing. Remember when we were kids? We had toast with real butter and cinnamon sprinkled on it!

I still do....teeheehee

 
 
Statistical Contribution

An Interesting Statistical Contribution from Leann

I was browsing the Forum and found this interesting post from Leann...good work mathematician!

Somebody posted Good-bye to this forum because there were no replies to her previous post. I don't really expect replies because there are so few of us out there. I just post here for other people to read.

Crunch the numbers:

Sweet syndrome is prevalent in women 30-50. To cover for outliers and male sufferers, I included all women age 15-65

World population women: 3,400 million

65% of world population are age 15-65

3,400 * 65% = 2,210 million

There are 500 million English speaking Internet users, 7,3% of the world population http://www.internetworldstats.com/stats7.htm

2,210 * 7,3% = 162 million

Prevalence of Sweet Syndrome is 1-9/1 million people

There are only 162 to 1458 people out there who are female, 15-65 years of age, are English speaking Internet users AND have sweet syndrome.

Of those maximum 1500 people, it is amazing that even a handful found this forum.

Thank you Leann...it makes me happy to know that we are reaching others and WOW thanks for crunching and contributing! Hugs, Kim

DISCLAIMER

Please remember I AM NOT a Doctor, Nurse, EMT or any other type of Medical Authority. I am a Sweet's Syndrome Survivor just like you. All information on this website is personal opinion or information that I am sharing with you that has been passed along to me or I have been through myself. Please check with your personal Physician before you try ANY drugs, Homeopathic or other treatment information included on this site if you are not sure how your body will react. Sweet Hugs...Kim

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